Friday, January 22, 2010

G-Man becomes P-Man

After marking time for three days, Graham has begun to show some positive signs. Quite simply, he is peeing! And I mean peeing! The renal team and surgical team agreed on a new strategy which was implemented last night, and it has worked wonders. The hope is that his urine output will continue to increase and that the edema will soon begin to abate, which should result in improvements in his heart and respiratory functions. The swelling has impacted Graham in so many ways.
Graham had the two chest tubes removed today, which meant Katie was allowed to hold him. She is one happy mommy. The proof is in the picture.
Graham is still on full ventilation, but his supplemental oxygen is now down to 27% and he is off the nitric oxide completely. He is doing fine with these changes as evidenced by his pulse oxygen level at or near 100%.
The G-Man is still not ready for breast milk. His stomach fluids are still green, rather than the clear liquid that will indicate his digestive system is ready for his mother's milk. He is continuing to receive his nutrition through his central line.
A rash continues to make appearances. It literally comes and goes and manifests itself on different places on his body. Dermatology doesn't have an answer, but preliminary results from the biopsy taken three days ago indicate a possibility of vasculitis (sp?). But Dr. West thinks it is just another symptom rather than a cause.
We have learned to keep an equilibrium through this whole drama, but positives are always welcome. We celebrate the small improvements, like we saw today, that will ultimately bring us back our healthy Graham. We are all ready to step off this roller-coaster ride of emotions. Thank you all for following us through this horrendous week. Your words of encouragement and prayers simply make everything easier.


  1. Yay, Graham, for peeing! Living in a houseful of messy boys, I never thought I would be saying that! Still praying! xxoo

  2. Hi,

    God bless you as you remain strong. Silence from me doesn't mean I have forgotten. Still praying.

    Phyllis Keller

  3. Yes We are so happy Graham is peeing :) I was on here untill midnight reading your story .Talking to my 17 yr old son, we both ended up in tears. Our family will keep you in our prayers. Your son is so beautiful as you well know!Keep up the good work P-man! God Bless, Amy Frederick Rieches

  4. We are happy to see some improvements.. We will keep the postive thoughts and prayers coming!
    Let us know if you need anything from us at all.
    Jeff and Bonnie

  5. Oh how wonderful to hear Graham is diuresing!!!! We continue to pray for all of you and also for wisdom, courage, strength, and peace. Praying for the miracles to continue to flow and for a healing in his little body. Also praying for the entire medical/nursing team for wisdom as they care for Graham. Love you all!!
    John, Laura, Rachel, Ryan and Aneta

  6. We are so glad to hear Graham is doing better! You have been and will continue to be in our thoughts and prayers.
    Adam and Jodi Burns

  7. Hey Bill and Katie,
    Andy passed this along and I just wanted you to know that Kristen and I are thinking about you. It sounds like you have real tough little guy on your hands there. It also sounds like you have a great care team there at Riley.

    With love from the west coast,
    Dusty Miller

  8. Graham,
    Good job with the peeing! we all breathe a collective sigh of relief from here. Sending our love and prayers to you and your Mommy and Daddy and all your family with you in Indy.
    Blessings from your all stitchin' sisters in Roanoke

  9. Ah the small things that we parents love to hear when it comes to our babies! I bet you guys never thought pee, poop and rash would become such a huge part of your vocabulary! I'm so happy to hear the news! You guys are one strong family! Keep up the good work Parents, Grandparents, Aunts and Uncles.

    Love Amber Naughton

  10. every day is a miracle, we are keeping you all in our thoughts and prayers.

    Chris and Carol Fenimore

  11. Who would have ever thought so many people would be so excited about one little boy's golden stream? Hoping for continuing daily improvements and that you all will soon be off this emotional roller coaster and able to bask in the enjoyment of a healthier baby day by day and able to savor the simply joy of just holding him close. Good thoughts still coming your way.

  12. Hearing about improvements is so fantastic! I'm going to guess that it's even BETTER for all of you :) What wonderful news...peeing is definitely exciting! We're praying for you every day :)

    -Angela and Josh

  13. Katie,
    I was so sorry to hear about your little boy's struggles. I will add you all to my prayer list. "I can do all things through Christ who strengthens me."
    Billie Sue

  14. So glad to hear about Graham's "P"rogress! :) :) :) Every little bit helps!