Monday, January 11, 2010

Catching a Glimpse

Tonight Bill and I saw (with a little prying from Bill) one of Graham's eyes. He even focused in on me for a couple seconds! That was a good moment.
As you can see in the picture, Graham's rash is completely gone, but the swelling is still there. My little 7 pounder weighs more than 10 lbs now with all the fluid that has settled in his body.
The top priorities now are getting rid of the swelling and getting his platelet levels up where they should be.
Today, G had an ultrasound of his spleen to make sure it was not enlarged. It was not. They also took a head ultrasound (I saw his brain!) to make sure blood was not present. It wasn't. Whew! They are looking for potential reasons why his platelet levels are so low, and docs were able to rule out both of those possibilities.
The Surgery Team, Dermatology, and Infectious Disease are all duking it out right now on what they think is the source of Graham's infection. Surgery is still thinking viral, and ID and Derm are thinking a staph infection affecting the skin, hence the rash and extreme peeling of the skin we're seeing now. We're still in wait-and-see mode, since some of the test results can take up to 2 weeks before showing anything.
I apologize to all of Graham's adoring fans for not posting these last couple days. I will definitely try not to let that happen again ... don't want to incur the wrath of Graham's fan base. : ) But don't worry if we miss a day or two ... sometimes there is little change from one day to the next. Please consider no news to be good news.
Thank you all for your concern for our little boy. Believe me, I understand how he just grabs onto your heart.

4 comments:

  1. Glad to hear Graham is doing better. I know you are getting advise from everyone, but Justin was hospitalized at a year old for an infection which caused extemely high temps. His Dr. could not figure out what it was and called in an infectious team and they to this day have no idea what kind of infection he had. All they determined was viral since after VERY strong antibiotics kicked it. He was on the same antibiotics they use for MRSA which they assured me he didn't have. Sometimes the answer isn't what you need....A back to normal baby is! We continue to think and pray for all you for quick healing! If you ever want to e-mail me or talk, you can do so through Facebook!
    Love,

    Amber Naughton

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  2. Great picture to see the big smile on Katie. That says it all!
    Love to everyone....
    The Dotys

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  3. Katie,

    You look good baby! Give Graham a big kiss from us. Can't wait to see you out on the trails.

    Love,
    Mylien & Jim

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  4. Bill & Katie,
    You are in our thoughts as we continue to pray for little Graham. Hang in there and please let us know if there is anything we can do to help :)

    Ryan, Carrie, Brookeanne & Easton

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